|
|
To enact sections 5.2228 and 101.38 of the Revised | 1 |
Code to designate May as Ohio Cystic Fibrosis | 2 |
Awareness Month and to create the Ohio Cystic | 3 |
Fibrosis Legislative Task Force to advise the | 4 |
State of Ohio on issues pertaining to the care and | 5 |
treatment of individuals with cystic fibrosis. | 6 |
Section 1. That sections 5.2228 and 101.38 of the Revised | 7 |
Code be enacted to read as follows: | 8 |
Sec. 5.2228. The month of May is designated as "Ohio Cystic | 9 |
Fibrosis Awareness Month" to increase public awareness of the | 10 |
disease, including its causes and health effects and to encourage | 11 |
and support research to develop effective medical therapies. | 12 |
Sec. 101.38. (A) As used in this section, "relative" means a | 13 |
spouse, parent, parent-in-law, sibling, sibling-in-law, child, | 14 |
child-in-law, grandparent, aunt, or uncle. | 15 |
(B) There is hereby created the Ohio cystic fibrosis | 16 |
legislative task force to study and make recommendations on issues | 17 |
pertaining to the care and treatment of individuals with cystic | 18 |
fibrosis. The task force shall study and make recommendations on | 19 |
the following issues: | 20 |
(1) Use of prescription drug and innovative therapies under | 21 |
the program for medically handicapped children established under | 22 |
section 3701.023 of the Revised Code and the program for adults | 23 |
with cystic fibrosis administered by the department of health | 24 |
under division (G) of that section; | 25 |
(2) Screening of newborn children for the presence of genetic | 26 |
disorders, as required under section 3701.501 of the Revised Code; | 27 |
(3) Any other issues the task force considers appropriate. | 28 |
(C) The task force shall consist of the following members, | 29 |
each with the authority to vote on matters before the task force: | 30 |
(1) Three members of the senate: two appointed by the | 31 |
president of the senate from the majority party and one appointed | 32 |
by the minority leader of the senate; | 33 |
(2) Three members of the house of representatives: two | 34 |
appointed by the speaker of the house of representatives from the | 35 |
majority party and one appointed by the minority leader of the | 36 |
house of representatives; | 37 |
(3) Three members, at least two of whom have been diagnosed | 38 |
with cystic fibrosis or are relatives of individuals who have been | 39 |
diagnosed with cystic fibrosis, appointed by the president of the | 40 |
senate; | 41 |
(4) Three members, at least two of whom have been diagnosed | 42 |
with cystic fibrosis or are relatives of individuals who have been | 43 |
diagnosed with cystic fibrosis, appointed by the speaker of the | 44 |
house of representatives. | 45 |
Initial members shall be appointed not later than sixty days | 46 |
after the effective date of this section. | 47 |
(D) Each member of the task force shall serve a one-year term | 48 |
that ends on the same day of the same month as did the term that | 49 |
it succeeds. Members may be reappointed. | 50 |
(E) A vacancy shall be filled in the same manner as the | 51 |
original appointment. Any member appointed to fill a vacancy | 52 |
occurring prior to the expiration date of the term for which the | 53 |
member's predecessor was appointed shall hold office as a member | 54 |
for the remainder of that term. | 55 |
A member shall continue in office subsequent to the | 56 |
expiration date of the member's term until a successor takes | 57 |
office or until a period of sixty days has elapsed, whichever | 58 |
occurs first. | 59 |
(F) Members of the task force shall elect a chair to serve a | 60 |
term of one year. A vacancy of the chair position shall be filled | 61 |
by election. | 62 |
(G) Members of the task force shall receive no compensation, | 63 |
except to the extent that serving as a member is part of the | 64 |
individual's regular duties of employment and except for the | 65 |
reimbursement of expenses that may be provided under division (H) | 66 |
of this section. | 67 |
(H) The task force may solicit and accept grants from public | 68 |
and private sources. Grant funds may be used to reimburse members | 69 |
for expenses incurred in the performance of official task force | 70 |
duties and to pursue initiatives pertaining to the care and | 71 |
treatment of individuals with cystic fibrosis. | 72 |
(I) A majority of the members of the task force constitutes a | 73 |
quorum for the conduct of task force meetings. | 74 |